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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Barth Syndrome Trust image

Barth Syndrome Trust image



Our volunteers have a very special role in our organisation.  The time and skills you devote to our group make a real difference to the lives of people affected by Barth syndrome.  


There are so many different ways of having fun as a volunteer and making a real difference.  Every little helps and volunteering can easily fit in with the time you have available.  Volunteers and friends often say how much satisfaction and enjoyment they get from being part of our community; contributing existing skills and learning new ones.


To find out more about volunteering please contact us.


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Collection Boxes

How about getting a few of our boxes displayed in your office, local shop or pub?


We can supply you with everything you need to start collecting for Barth Syndrome UK

Barth Syndrome Trust graphic
Barth Syndrome Trust graphic
Barth Syndrome Trust graphic