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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

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Terms and conditions/Privacy Policy/Disclaimer

This page and the references on it tell you how you may use our website http://www.barthsyndrome.org.uk/. Please read these terms of use carefully before you start to use the site. By using our site, you indicate that you accept these terms of use and that you agree to abide by them. If you do not agree to these terms of use, please refrain from using our site.

 

Privacy Policy 

 

Information about us

www.barthsyndrome.org.uk is a site operated by Barth Syndrome UK. We are a charity registered in England and Wales under charity number 1181830 and have our registered office at 1 The Vikings, Romsey, Hampshire, SO51 5RG.

 

Barth Syndrome UK is affiliated to the Barth Syndrome Foundation, Inc (BSF), a charity registered in the USA as we believe that working together maximises our success. For this reason, we sometimes share essential information between authorised representatives of the licensed affiliates. Also, some links on our website are to the BSF website.

 

Disclaimer

Barth Syndrome UK website is designed for educational purposes only and is not intended to serve as medical advice. The information provided on this site should not be used for diagnosing or treating a health problem or disease. It is not a substitute for professional care. If you suspect you or your child(ren) may have Barth syndrome, you should consult your health care provider.

 

Viruses, hacking and other offences

You must not misuse our site by knowingly introducing viruses, trojans, worms, logic bombs or other material which is malicious or technologically harmful. You must not attempt to gain unauthorised access to our site, the server on which our site is stored or any server, computer or database connected to our site. You must not attack our site via a denial-of-service attack or a distributed denial-of-service attack.

 

By breaching this provision, you may commit a criminal offence under the Computer Misuse Act 1990. We will report any such breach to the relevant law enforcement authorities and we will co-operate with those authorities by disclosing your identity to them. In the event of any breach of this provision, your right to use our site will cease immediately.

 

We will not be liable for any loss or damage caused by a distributed denial-of-service attack, viruses or other technologically harmful material that may infect your computer equipment, computer programs, data or other proprietary material due to your use of our site or to your downloading of any material posted on it, or on any website linked to it.

 

Links to our site

You may link to our home page, provided you do so in a way that is fair and legal and does not damage our reputation or take advantage of it, but you must not establish a link in such a way as to suggest any form of association, approval or endorsement on our part where none exists.

 

You must not establish a link from any website that is not owned by you.

 

Our site must not be framed on any other site. We reserve the right to withdraw linking permission without notice.

 

Links from our site

Where our site contains links to other sites and resources provided by third parties, these links are provided for your information only. We have no control over the contents of those sites or resources, and accept no responsibility for them or for any loss or damage that may arise from your use of them.

 

Intellectual property rights

We are the owner or the licensee of all intellectual property rights in our site, and in the material published on it.  Those works are protected by copyright laws and treaties around the world.  All such rights are reserved.

 

You must not modify the paper or digital copies of any materials you have printed off or downloaded in any way, and you must not use any illustrations, photographs, video or audio sequences or any graphics separately from any accompanying text.

 

Our status (and that of any identified contributors) as the authors of material on our site must always be acknowledged.

 

You must not use any part of the materials on our site for commercial purposes without obtaining a licence to do so from us or our licensors.

 

If you print off, copy or download any part of our site in breach of these terms of use, your right to use our site will cease immediately and you must, at our option, return or destroy any copies of the materials you have made.

 

Trade marks

Barth Syndrome UK and the accompanying logo and all other Barth Syndrome UK trade names, logos or project names are our registered or unregistered trademarks and/or other intellectual property of Barth Syndrome UK or third parties. You may not copy, use or reproduce these without our prior written consent.

 

Jurisdiction and applicable law

The English courts will have exclusive jurisdiction over any claim arising from, or related to, a visit to our site although we retain the right to bring proceedings against you for breach of these conditions in your country of residence or any other relevant country. These terms of use are governed by English law.

 

Variations

We may revise these terms of use at any time by amending this page. You are expected to check this page from time to time to take notice of any changes we havemade, as they are binding on you. Some of the provisions contained in these terms of use may also be superseded in order of precedence by provisions or notices published elsewhere on our site.

 

Your concerns

If you have any concerns about material which appears on our site, please contact info@barthsyndrome.org.uk.

 

Thank you for visiting our site.

 
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