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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

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Barth Syndrome Trust image


Research Grant Program

Since 2002 we, the international Barth Syndrome charity groups in UK, USA, Canada, France and Italy, have awarded a total of US $5.6 million through 115 research grants to 67 principle investigators worldwide.


We encourage basic science and clinical research on the natural history, biochemical basis, and treatment of Barth syndrome. In addition to this fundamental program, we are pleased to announce the availability of specific REQUEST FOR APPLICATIONS (RFAs) as part of the BSF Research Grant Program. These RFAs are in addition to the usual appeal for research grant applications on Barth syndrome. The goal of BSF´s Research Grant Program is to advance medical knowledge of the basic mechanism of the disease to develop more accurate diagnostic methods and improved specific therapies for children and adults affected by Barth syndrome. Applicants should determine whether to apply for an Idea Grant (US $50,000 maximum for 1-2 years), or for a Development Grant (US $100,000 maximum over 2-3 years) as appropriate. All Development Grant applications and applications to the RFAs require a letter of intent (1-page maximum with due date of September 7, 2017) explaining their idea. Feedback will be provided by the Grant Review Committee of the Scientific and Medical Advisory Board.


Please visit our website for regular updates regarding our RFA’s.

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Are you a researcher interested in  Barth syndrome?

If you are, please visit our webpage for more information about how to apply.



Barth Syndrome Trust graphic
Barth Syndrome Trust graphic
Barth Syndrome Trust graphic