Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Useful links
United States
Barth Syndrome Foundation
United Kingdom
Cardiac Risk in the Young (CRY)
Children Living with Inherited Metabolic Diseases (CLIMB)
NHS Specialised Service for Barth Syndrome
The Transition Information Network (TIN)
Links
We work closely and are a licensed affiliate of the Barth Syndrome Foundation.
Please visit their site if you can't find what you're looking for on our site.
