Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Our members include affected families, volunteers, doctors and scientists from all over the world. We can put you in contact with the necessary people if you are seeking support or information, via our contact form or one our international affiliates.
Association Barth France
13 rue de la Terrasse
Telephone: +33 1 45 00 86 12
Barth Italia Onlus
Website: http://www.barthitalia.org Email: firstname.lastname@example.org
162 Guelph Street, Suite 115
Georgetown, ON L7G 5X7
Telephone: 1-888-732-9458 or 905-873-2391
Website: www.barthsyndrome.ca Email: Contact Us
European families with a valid S2 form (previously E112) are able to access the NHS Service if there is not a centre of excellence for Barth syndrome in their home country.
Medical emergency or just need to talk?