Saving lives through education, advances in treatment and finding a cure for Barth syndrome
International
Our members include affected families, volunteers, doctors and scientists from all over the world. We can put you in contact with the necessary people if you are seeking support or information, via our contact form or one our international affiliates.
Association Barth France
13 rue de la Terrasse
92150 Suresnes
France
Telephone: +33 1 45 00 86 12
Website: http://barthfrance.com E-Mail: Contact Us
Barth Italia Onlus
Piazza Carrobiolo 5
20900 Monza
Italy
Telephone: 3391127252
Fax: 0392023777
Website: http://www.barthitalia.org Email: info@barthitalia.org
20900 Monza
Italy
Telephone: 3391127252
Fax: 0392023777
Website: http://www.barthitalia.org Email: info@barthitalia.org
Barth Syndrome Foundation of Canada
162 Guelph Street, Suite 115
Georgetown, ON L7G 5X7
Canada
Telephone: 1-888-732-9458 or 905-873-2391
Website: www.barthsyndrome.ca Email: Contact Us
162 Guelph Street, Suite 115
Georgetown, ON L7G 5X7
Canada
Telephone: 1-888-732-9458 or 905-873-2391
Website: www.barthsyndrome.ca Email: Contact Us
European families with a valid S2 form (previously E112) are able to access the NHS Service if there is not a centre of excellence for Barth syndrome in their home country.