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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

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Barth Syndrome Trust image

 

International

Our members include affected families, volunteers, doctors and scientists from all over the world.  We can put you in contact with the necessary people if you are seeking support or information, via our contact form or one our international affiliates.

Association Barth France

13 rue de la Terrasse

92150 Suresnes

France

Telephone: +33 1 45 00 86 12

Website: http://barthfrance.com  E-Mail: Contact Us

 

Barth Italia Onlus

Piazza Carrobiolo 5
20900 Monza
Italy
Telephone: 3391127252
Fax: 0392023777
Website: http://www.barthitalia.org  
Email: info@barthitalia.org 

 

Barth Syndrome Foundation of Canada
162 Guelph Street, Suite 115
Georgetown, ON L7G 5X7
Canada 
Telephone: 1-888-732-9458 or 905-873-2391 
Website: www.barthsyndrome.ca  
Email: Contact Us

 

European families with a valid S2 form (previously E112) are able to access the NHS Service if there is not a centre of excellence for Barth syndrome in their home country.

 

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Medical emergency or just need to talk?

 

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