Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Get in Touch
General Enquiries and Donations:
Barth Syndrome UK
1 The Vikings
Telephone: +44 ( 0) 1794 518 785
Webmaster: Marco Damin
Patient in crisis or need information about treating a patient? Please contact us and we’ll put you in touch with a clinician who has treated multiple patients with BTHS.