Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Get involved by becoming a donor, volunteer or friend
We always need your donations and help to enable us to:
- Save the lives of individuals affected by Barth syndrome
Provide a caring and informed community for families affected by
- Support research into treatments, cause(s) and a cure.
Donors, volunteers, and friends often say how much satisfaction and enjoyment they get from being part of our community; contributing existing skills, learning new ones and finding others.
There are many different ways you can help. We are an entirely volunteer-led organisation – we fundraise, do the administration and accounts, train new volunteers, work to raise awareness of the disorder, improve healthcare and provide a caring community.
There is also IT support, website design and preparing publications. You may help in any of these activities. We value whatever you do or give, which will make a real difference to our work.
It's easy to start fundraising - just take a few of our collection boxes for display in your office, local shop or pub.
We can supply you with everything you need to start collecting - thank you!