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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Barth Syndrome Trust image

Barth Syndrome Trust image


Get involved by becoming a donor, volunteer or friend

We always need your donations and help to enable us to:

  • Save the lives of individuals affected by Barth syndrome 
  • Provide a caring and informed community for families affected by 

    Barth syndrome

  • Support research into treatments, cause(s) and a cure.

Donors, volunteers, and friends often say how much satisfaction and enjoyment they get from being part of our community; contributing existing skills, learning new ones and finding others. 


There are many different ways you can help.  We are an entirely volunteer-led organisation – we fundraise, do the administration and accounts, train new volunteers, work to raise awareness of the disorder, improve healthcare and provide a caring community. 


There is also IT support, website design and preparing publications.  You may help in any of these activities.  We value whatever you do or give, which will make a real difference to our work.

Barth Syndrome Trust graphic

Collection Boxes

It's easy to start fundraising - just take a few of our collection boxes for display in your office, local shop or pub.


We can supply you with everything you need to start collecting - thank you!

Barth Syndrome Trust graphic
Barth Syndrome Trust graphic
Barth Syndrome Trust graphic