Barth Syndrome Trust logo
A A A
SEARCH  

Saving lives through education, advances in treatment and finding a cure for Barth syndrome

Barth Syndrome Trust image

Barth Syndrome Trust image

 

This section is specifically for families.  Here you'll find information about the more medical side of the condition, such as:

  • How to Diagnose Barth syndrome
  • How Barth syndrome is passed down
  • Detailed information about symptoms
  • Current Treatments
  • Potential New Treatments in the Pipeline

 

Please also visit our pages titled 'Support for living with Barth syndrome ' where you'll find a wealth of information about day-to-day life with the condition.

 

Barth Syndrome Trust graphic

Contact us

Do you need information or just need to talk?

 

Please get in touch with someone who understands

Barth Syndrome Trust graphic
Barth Syndrome Trust graphic

"I had an instant feeling of support when I called Barth Syndrome UK."

 

Parent

 
Barth Syndrome Trust graphic