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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

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Barth Syndrome Trust image

 

Emergency Resources for Hospital

Contact Details in case of Emergency

Please contact the NHS Specialist Service for Barth syndrome if you need any information regarding a seriously unwell patient:

 

Email:barthsyndromeservice@uhbristol.nhs.uk

Tel: 0117 342 8102

Specialist Nurse: 07795 507294 (mobile)

 

Dr Germaine Pierre  & Dr Effie Chronopoulou Barth/Metabolic Consultants

Dr Guido Pieles:Cardiac Consultant

Dr Oliver Tunstall: Haematology Consultant

 

Hospital Management Plan

Anaesthesia Guidelines

Managing diarrhoea and/or vomiting

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Need info?

Please contact the NHS Specialist Barth Syndrome Service for advice about treating a patient with Barth syndrome

Barth Syndrome Trust graphic
Barth Syndrome Trust graphic
 
Barth Syndrome Trust graphic