Saving lives through education, advances in treatment and finding a cure for Barth syndrome
Emergency Resources for Hospital
Contact Details in case of Emergency
Please contact the NHS Specialist Service for Barth syndrome if you need any information regarding a seriously unwell patient:
Email:barthsyndromeservice@uhbristol.nhs.uk
Tel: 0117 342 8102
Specialist Nurse: 07795 507294 (mobile)
Dr Germaine Pierre & Dr Effie Chronopoulou Barth/Metabolic Consultants
Dr Guido Pieles:Cardiac Consultant
Dr Oliver Tunstall: Haematology Consultant
Need info?
Please contact the NHS Specialist Barth Syndrome Service for advice about treating a patient with Barth syndrome
