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Saving lives through education, advances in treatment and finding a cure for Barth syndrome

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The Bristol team



Dr Colin Steward (Lead Consultant for the Service)
T: 0117 342 8044

For urgent advice out of hours, Dr Steward can be contacted though Switchboard at Bristol Royal Infirmary on 0117 923 0000.


Dr Alison Hayes (cardiology)
T: 0117 342 8848


Dr Ruth Newbury-Ecob (genetics)
T: 0117 342 5107


Multidisciplinary team


Debbie Riddiford - Barth Syndrome Clinical Nurse Specialist
T: 0117 342 8088


Dr Vanessa Garratt - Principal Clinical Psychologist

T: 0117 342 8163


Nicol Clayton - Specialist Dietitian
T: 0117 323 5428

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Next clinic date

See Home Page

for details of

latest clinics

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Free Test

If you are a parent of a child with Barth syndrome or a doctor who would like to arrange a free test for Barth syndrome or are treating a patient who is eligible for referral to this service, please contact us for further details.

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“ It totally exceeded all my expectations. This is the first time we've been able to talk to experts in the condition who are so knowledgeable but who are also so friendly and approachable and willing to listen to and work with us.”


“This is the first time we've ever been able to speak to a psychologist and I'm so grateful for this opportunity.”


“Being able to share experiences with other families is incredible - we want more!”

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