BST Home

Upcoming and Past Events

Contact Us

Links

Donations

 

Links

 

United KingdomFrance - Nederland - Other Countries

 

United Kingdom

 

Bmycharity

Contact A Family

Cardiac Risk in the Young (CRY)

Cardiomyopathy Association

Children Living with Inherited Metabolic Diseases (CLIMB)

Children's Heart Federation

Genetic Interest Group

GIFT - The Children's Transplant Charity

The Transition Information Network (TIN)

 

 

 

Return to top

 

France

 

“À tire-d’ailes” (soutien financier aux personnes atteintes de maladies métaboliques)

Alliance Maladies Rares

Association “Les Enfants du Jardin” (maladies métabolique)

Association Contre les Maladies Mitochondriales (AMMI)

Association Française contre les Myopathies (AFM)

Association Nationale des Cardiaques Congénitaux (ANCC)

Club Enfants Cardiaques

Fédération Française des Associations des Greffés du Coeur et des Poumons (F.F.A.G.C.P.)

Heart and Coeur

IRIS (Immuno-déficience Héréditaire)

La Chaînette (contacts maladies rares, maladies isolés)

La Chaînette (contacts maladies rares, maladies isolés) (international)

Maladies Rares Info Service

 

Return to top

 

 

Nederland

 

Algemene Nederlandse Gehandicapten Organisatie (ANGO)

Chronisch zieken- en gehandicaptenraad

Erfocentrum

Extra Kinderbijslag voor kind met handicap

Handicap of chronische ziekte

Hartezorg

Hulp bij verkrijgen van voorzieningen

Nederlandse Hartstichting

Patiëntenvereniging Aangeboren Hartafwijkingen

Persoonsgebonden Budget

Stichting hoofd hart en vaten

Vereniging Spierziekten Nederland

Volwassenen, Kinderen en Stofwisselingsziekten

 

Return to top

 

Other Countries

 

Barth Syndrome Foundation

Barth Syndrome Foundation of Canada

Barth Syndrome Trust of South Africa

Eurordis - European Organisation for Rare Diseases

 

Return to top

 

If you would like a link to your website to be included or have any problems with any of the links, please click here.

 

United KingdomFrance - Nederland - Other Countries

 

 

HomeNHS ServiceContact UsResourcesLinks - Donations

 

 

Registered Charity Number 1100835                                                                                                 Last updated 18-Oct-10